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Fighting the Sickle Cell Anemia Stigma By J R Perry

                         Fighting the Sickle Cell Anemia Stigma         

By J.R. Perry



There’s quite a lot of stigma toward the whole subject of sickle cell anemia. People can feel guilty because they carry a gene and they choose not to talk about it. So they need to talk about it to start breaking down the barriers and the stigma. People are a bit sensitive about screening but you now can be enrolled on a program and start to care for your baby with sickle cell anemia. Sickle cell anemia can no longer be overlooked upon as a largely black disorder. There has been the crossing of racial boundaries with sickle cell. 

Sickle cell anemia has not been highlighted because it is a black disorder so it has not received any spotlight with interracial mixing. We are starting to see white babies born with sickle cell anemia. Although times have changed people still have a stigma about sickle cell anemia they think it is a “curse of the devil.” Many physicians and scientists both black and white have complained that restrictions against blacks with the sickle cell trait was a senseless stigma and unscientific suggestion that their genes were somehow inferior in addition of its use in barring blacks.

From the air force academy the trait has also been cited by the Navy in keeping blacks out of the submarine service and by the Army although they will not allow the sickle cell trait carriers to become aircrew members. This policy persists in the Air Force itself despite today’s change in admissions policy but it is under review. Blacks have also been charged more money for insurance policies when it was learned that they had the trait. Sickle cell trait screening has not been limited to the military or to the insurance companies in the chemical industry theories have been expounded for years that sickle cell trait carriers were at special risk in the chemical work place.

The Dupont Company said in February 1980 that it routinely gave pre-employment blood test to all blacks to determine who might be a sickle cell trait carrier. Today the law would be condemned as racial profiling.  The stigma was made worse by a misunderstanding of the inheritance of the condition contrary to report of premature deaths carriers of the sickle cell gene were in almost all cases, healthy genetic screening and public immunization programs have also raised suspicions among blacks and sickle cell anemia.

Screening programs of the 1970’s created misinformation confusion and feared inadequate planning and preparation on the part of the medical profession and public health officials and a disease and having it resulted in unnecessary stigma and discrimination as a result. Of this confusion and misinformation a great suspicion arose in the African American community that the sickle cell policy was another instrument of genocide.

J.R. Perry's  Journey started  at the age of 3 years old J.R. became interested in music.  Before long J.R. was singing, and it  was apparent that he was born with a gift.  J.R. was encouraged to develop and strengthen his young voice.  As J.R. worked with his talented voice it became clear that he had another talent- songwriting.  At the age of 9 years old he wrote his first song.  It seemed that J.R. was destined for success in the entertainment industry.
As time went on J.R. continued his musical aspirations in many forms.  J.R. was the innovator of many musical groups throughout the 1970's and 1980's.  Not only leading and cultivating groups, but also performing.  J.R. also excelled as an instrumentalist.  He plays the keyboards, trombone, bass guitar- as well as performs the task of drum programmer.  J.R. has developed many types of musical productions exhibiting his talent to sing the diverse musical genre spectrum from R&B, Hip-Hop, Pop, Gospel, Funk, and Jazz.  J.R. excels in areas of vocals where his 4 1/2 to 5 octave range is stressed.
A highly diversified individual, it was not long before J.R. discovered his many other talents in the entertainment field.  Before long he was performing and writing voice overs and jingles which lead to his interest in television. In addition to singing, and television, J.R. started a record production company adding entrepreneur to his resume.
With a love for music, J.R. started his own record label, Pro-Per Records.  In addition to owning and operating the label J.R. is also involved in performing and songwriting. J.R. has released a hit single entitled "Valentine Lover" which was played on various radio stations in the United States , and widely accepted in Europe .  Pro-Per Productions the parent company established for further diversification. 
Always looking for new challenges- 1990 seemed to be the year for television.  J.R. was offered the opportunity to produce a cable access show.  Thus the J.R. Perry Show was born.  With a love for the entertainment industry and his community the two areas fused together well for his show. The J.R. Perry Show was a sit-down host-guest format, incorporating interviews with renowned musical guests as well as community leaders.  The show also highlighted sizzling musical videos and live performances excerpts. With a firm track record for over 12 years, the show had a loyal following, which always delivered on the shows motto "Together We'll Make A Difference."
J.R. has been acknowledged repeatedly by various civic leaders, and industry insiders for the positive elements of his empire.  Wearing so many hats may be difficult for some, but not for someone such as J.R. Perry III, with a true love for the business to succeed.
Currently J.R. is working on various projects for Pro- Per Productions.  These projects include songwriting, musical arrangement, and television development. His own internet Radio Station called Love Drop Radio.com, Also J.R. is performing  voice overs for radio and television, he has written and produced plays and sitcoms ready for the stage or television. J.R. has also written and produced various genders of music ready to be released in the  marketplace. J R  Has a  Large Publishing, Catalog with BMI for many years showing his devotion and dedication to his art, J.R. Perry's diversity will prevail.



    This song was written for my 11 yr old son Jameel Perry who has the disease of sickle cell anemia. Jameel has been through a lot with this disease and on August 4, 2009 he suffered a stroke. He had paralysis on the right side of his body. Jameel has made a miraculous recovery from his stroke but he is still receiving chronic blood transfusions every 2-3 weeks in the hospital and is on daily medicine. We have a doctor with the cure for this disease Dr. Robert Broyles of the Sickle Cell Cure Foundation sicklecellcurefoundation.org who is going into Phase 2 of Clinical Trials. We are asking for your love and support to donate to this cure that it is motion. We can all make a difference and eradicate this deadly disabling, painful and suffering disease. To make donations online please go to lovedropradio.com and drop down on the sight and click on the donation button. Please lets help the oldest inherited disease on this planet and save lives.

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